Feeds:
Posts
Comments

Posts Tagged ‘determination’

“See me first and then my disability, or just see me.” – Robert Pio Hajjar

I have a friend who has been given a gift, this gift is filled with joy, filled with innocence, filled with love. this gift is like no other gift, you can’t return it or exchange it, you can’t re-package it or put it in the cupboard to pass on to someone else. This gift is forever. This gift is her son and he has Down syndrome.

In the last year or so I have watched as my friend has been knocked down time and time again by an unforgiving system, (with exception of a few) that doesn’t seem to be able to support her or is unwilling to find ways to do so. Every time she is knocked down, she stands right back up and starts all over again. I can only guess at the mental and emotional resilience required by her and her family to constantly face the negativity, discrimination and inequity that she has to deal with on a daily basis.

In the short time I have known this beautiful boy I have been blessed to experience his unguarded excitement, exuberant affection, focussed determination and heartfelt gentleness. This boy is no better than any other child, he is not perfect,  he doesn’t deserve more than anyone else, he is just like every other little boy and girl. He laughs, learns, plays and gets into mischief just like all the other children.

“I won’t change anything about Archie because he has Down syndrome, I won’t take that away.” ~ Archie & Me

Yes, he does need extra help in school and looking after him requires a little extra vigilance as the sighting of a butterfly might catch his eye and send him running after it onto another adventure. Maybe at times if we could see life through his almond shaped eyes, we could remember the wonder that the world holds and forgive his flights of fancy and thank him for showing us another view. Maybe we could help him on his way to his dreams and we may even be lucky enough to catch some of his magic along the way.


“when people like me are given love, encouragement and opportunity, amazing results are possible” ~ Rober Pio Hajjar – Ideal Way

As an observer in my friends world, I am grateful that she has chosen the long and difficult road of including her son in a mainstream school, in doing so, she opens up our children’s world to learn tolerance, inclusion, compassion and equality and for that I am grateful.

The world is not a perfect place, it is messy, joyful, sad, complicated and colourful, we would all do well to remember that we are only a very small part of what makes up a very big planet for which we all have our own purpose to be on and share.

To my dear friend, your road is long and challenging but you are brave and strong and we will all be by your side as you make your journey. Not only to support you and your family but also to share in the magic that follows you. Thank you for letting us be a part of your son’s life, in doing so, you have shared your precious gift with us.

Read Full Post »

%d bloggers like this: